Online support group. This is an internet support group, based in the USA, just for women with this condition. They provide a range of different communication areas, information and support.

or contact MRKH-L-team@surrogacy.org

(Welcomes all similar conditions). This is a group providing support, information, newsletters and meetings for anyone with an intersex condition and also for parents of children with an intersex condition. They have links with groups in many countries and clinicians around the world.

Website:

Provides support, newsletters, information and meetings for families and people with CAH. They also aim to raise awareness of the condition with the public and the medical profession.

Contact Climb organisation 01270 259375

Website:

Email: webmaster@cah.org.uk

A UK support group for adults with CAH, providing email and telephone support, information and meetings.

Email: ahn@mlcull.demon.co.uk

Website:

A USA support group providing, information, support and networking for parents and people with Turner's syndrome with some Y material, mixed gonadal dysgenesis, XY-XO diagnosed conditions.

Website:

Email: info@xyxo.org

A USA based support group providing information and support for both parents and people with bladder exstrophy conditions.

Website:

Email: Exstrophy@aol.com

ISNA is a public awareness, education, and advocacy organization working for intersex people.

Website: Email: webmaster@isna.org

DSD Teens

DSD Families

Intersex Society of North America

NHS Choices

Living with Congenital Adrenal Hyperplasia

AIS DSD Support Group

Turner's Syndrome Support Society  

MRKH

Association for bladder extrophy community